A Morris K. Udall Center of Excellence
for Parkinson's Disease Research
Links for Patients and Families
WASHINGTON STATE
Parkinson’s Disease
American Parkinson Disease Association (APDA), Washington Chapter, Information and Referral Center supports the needs of people in Washington State with Parkinson’s disease, their families, and their caregivers through education, sponsoring support groups, and networking with resource and referral agencies. Call Kristin Murphy, Center Coordinator at 206-277-5516 or email apda@uw.edu.
Northwest Collaborative Care supports individuals and/or groups working in the Northwest to improve the quality of life for those affected by neurocognitive and neurodegenerative diseases such as Parkinson’s disease, other Parkinson’s-like diseases, and dementia with Lewy bodies. Call 509-777-0087 or write 507 S. Washington, Suite 140, Spokane WA 99204.
The Northwest Parkinson's Foundation (NWPF) works to improve the quality of life for the Northwest Parkinson's disease community through programs of awareness, education, advocacy and care. Call 877-980-7500 (toll free) or 206-748-9481 or email info@nwpf.org.
The Washington State Parkinson Disease Registry (WPDR) connects people with Parkinson’s disease to the research community by informing patients about upcoming research trials and assisting researchers with the recruitment of eligible patients. Call 888-365-9901 (toll free) or email wpdr@u.washington.edu.
Related Diseases
The Alzheimer's Association, Western and Central Washington State Chapter provides programs and services designed to help people with memory loss and their caregivers and families. Contact the 24/7 Helpline at 800-848-7097.
General Assistance
Senior Services serves older adults and their caregivers in King County, WA by assisting in finding the right social services and other needed support. Call 888-435-3377 (toll free) or 206-448-5757 or email info@seniorservices.org.
NATIONAL
Parkinson’s Disease
American Parkinson Disease Association (APDA) is a national organization focused on research, patient support, education, and raising public awareness of Parkinson’s disease. The APDA, Washington Chapter listed above is one of over forty chapters around the country. Call 800-223-2732 (toll free) or email apda@apdaparkinson.org.
Parkinson’s Action Network The Parkinson’s Action Network (PAN) is a national advocacy program for numerous public policy issues affecting the Parkinson’s community and brings awareness to the public and lawmakers about the effects of Parkinson’s disease. Call 800-850-4726 (toll free) or email info@parkinsonsaction.org.
The Parkinson’s Disease Foundation (PDF) funds promising research to find the causes of and a cure for Parkinson’s disease while supporting those with Parkinson’s disease, their families, and their caregivers through educational programs and support services. Call 800-457-6676 (toll free) or email info@pdf.org.
The Parkinson Pipeline Project promotes policies to accelerate the evaluation and approval of new treatments for Parkinson’s disease by providing a patient perspective to industry sponsors and investors, clinical scientists, and government regulatory agencies. Email clinicaltrial_topics@pdpipeline.org.
Related Diseases
The Lewy Body Dementia Association raises awareness of the Lewy body dementias (LBD); supports patients, their families and caregivers; and promotes scientific advances. Call the Caregiver Helpline at 800-539-9767 (toll free) or the national office in Atlanta at 404-935-6444.
General Assistance
The National Family Caregivers Association (NFCA) offers resources and support for those who care for loved ones with a chronic illness or disability and address the common needs and concerns of family caregivers regardless of diagnosis or disease. Call 800-896-3944 (toll free) or email info@thefamilycaregiver.org.